25 June, 2003

First update sent out after dad's stem cell treatment went badly

I thought it may be good to preserve these for later reflection. This was the first update sent out to try to let everyone who cared know what was going on, and be as involved in the process as possible. The main focus was to keep things as upbeat and positive as possible, while still being completely realistic & not establishing any false expectations.

Hi everyone,
I've got a very incomplete listing of addresses to whom this message should be sent... most of the addresses have been gleaned from old messages that my dad has sent out. Feel free to forward if necessary.
There's a lot going on... just wanted to send out an update about my dad, Eric. Monday was a very rough day, but things have stabilized now. He is receiving excellent care at UNMC hospital in Omaha. The staff are wonderful. I'm back in Lincoln at the moment, but based on the individuals I've met who are caring for my dad, I can feel very comfortable saying that he's in exceptional hands.
Dad received a stem-cell transplant on Tuesday, 10 June, to combat the Kidney Cancer he's been struggling against for nearly 3 years now. He is currently (as of Monday afternoon) on a ventilator, and under sedation. The ventilator is primarily for comfort; he's still mostly breathing on his own, which is very good. His lungs are still ok.
The chemotherapy agents that prepared his body for his new immune system were causing him to suffer very badly. Sedation and the ventilator were the best, if not the only, chance for dad to get rest and a chance to recuperate.
His remaining kidney (one kidney was removed 3 years ago with his first surgery to remove the tumor) is not, currently, able to deal with the level of toxins and fluids in his body, so he is very swollen, and the doctors are very concerned about edema in his brain. If his kidney doesn't step up to the challenge, they will need to do dialysis to clean out his system and protect his brain. The situation is being monitored closely, and the dialysis is a good option that should do the trick if it is deemed necessary.
Other major concern is that, normally (in a stem-cell transplant of this type), the window for the grafted immune system to kick in and start producing white blood cells is from 11-14 days after the transplant. Dad is now on the late side of that window, and the new immune system still hasn't become active. It is very rare for the grafted immune system to completely fail to produce anything, so it is most likely that dad is a bit of a late-bloomer.
As of Monday afternoon, he's finally somewhere near "comfortable." He will remain sedated until his situation improves. We're waiting on a lot of things, but currently are in a somewhat stable holding pattern... and just exceptionally glad that he's in a place where we can "hold" somewhat peacefully for a bit. We're all holding up as well as can be expected, and playing the waiting game.
That's about all right now... feel free to check with me if you've any questions. I'll do my best to answer or take care of anything. Positive thoughts and prayers are, of course, deeply appreciated (please, however, don't send flowers... they can not go in his room while he has no immune system).
take care,
-p

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